Seven-year old Kevin lives with his mother and three siblings in Frederick, Maryland. He is diagnosed with autism, hydrocephaly, toxoplasmosis, and a seizure disorder. Kevin has had over 15 different surgeries since birth. Kevin does not speak, has low muscle tone, and is fed using a gastrostomy tube.
Kevin attends Rock Creek School Special Education Program. He receives occupational and speech therapy. He enjoys playing on the computer and swimming. He requires one-to-one supervision at school and at home due to safety concerns such as strong seizure activity and constant danger of falling, among others.
A single mother, Kevin’s mother cares deeply for her son. Due to Kevin’s numerous medical appointments and health emergencies, it is difficult for her to maintain a consistent job or seek full time employment. Kevin was denied nursing care from the Rare and Expensive Case Management Service and cannot access respite services from the Developmental Disabilities Administration (DDA).
The search for services is impacted by lack of information in Spanish, his mother’s primary language. Information on resources is often not available in languages other than English. Families like Kevin’s are at a disadvantage due to language barriers within school systems and the general community.
Kevin is in desperate need of supports to increase his abilities, safely access the community , and grow to be a more independent young man.
Kevin and his family are always a “heartbeat” away from an emergency. Crisis Resolution funding from the Developmental Disabilities Administration can offer Kevin and his family the hope that they need for a safe, secure, and productive future.
SB 413/HB 1499 – Developmental Disabilities Administration – Crisis Resolution Funding will provide relief.